Families who consent to be a part of the registry will be required to have one visit with the site coordinator and research assistant to complete any assessments necessary. Families receive a brief report on this assessment. Families are then connected with a Nurse who can address questions related to the ASD diagnosis or any health related questions. The site coordinator and the nurses may also provide support around accessing appropriate services. Families receive regular updates re: events, workshops, conferences and services, and are contacted annually to review their child’s progress and collect updated information.
/ / Family Involvement