How to Advocate for Your Child or Youth with FASD

Tips to remove barriers for your child or youth with FASD by advocating for the education, tools and supports that will help them thrive.

* Published on February 22, 2021

Advocating for your child or youth with FASD at their school and in their other environments can help remove barriers for your loved one and set up everyone to successfully interact with them. Ensure that community members provide the necessary support and accommodations for your child to continue to thrive and to reach their full potential.

Be an Advocate

Let teachers/professionals know your child needs support
- Tell them what your expectations are for your child
Find out what FASD resources are available in your school board
- Request a FASD resource team member to attend IPRC and IEP meetings
Inform on FASD
- Many professionals do not have this information
- Have a support worker/FASD worker/another parent accompany you, even if meeting virtually
Keep a record of all meetings and conversations you have about your child
- This makes it easier for professionals to work with you
- Provides guidance on what to do next
Be prepared before meetings
- Write down your goals for your child for each environment – this helps keeps your messaging consistent
- Be clear about what you want – this helps others follow through on their commitments
- Develop feasible, actionable suggestions
Maintain consistent communication with the professionals in your child or youth’s life
- Keep them updated about what’s going on at home

References

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